Job Title: Chief Executive Officer

Place of Work: Charcot-Marie-Tooth UK
Location of Work: Christchurch
Salary: 20,000 (FTE 30,000)

The position is offered as: Part-time  Permanent

Details of Hours / Contract Length: 25 hours

Description of Vacancy:
Charcot-Marie-Tooth UK is the only national charity supporting people affected by Charcot-Marie-Tooth disease, a rare hereditary, neurological condition affecting mobility and dexterity of affected individuals.

The charity has been in existence since 1986, and over this time, has progressed from a charity run by the Board of Trustees in their homes, to an organisation employing four part-time members of staff, supporting 1,300 members and many thousands more through other channels. You can find out more about CMT and our work at

The current Chief Operating Officer, Karen Butcher, has left the organisation after many years involvement with the charity, and we are recruiting for her replacement to lead the charity.

Our strategic priorities are to increase membership and income, in order to increase the reach of our services to people who need them, and to constantly improve services to help people with CMT live better with their condition.

Charcot-Marie-Tooth UK is a small charity, with an income of circa 200K and a skill staff of four, including two Information and Support Advisers one of whom is also a registered Occupational Therapist and an Accounts Manager who is responsible for the finances and payroll.

We are looking for a motivated, resourceful and effective leader with a track record of achievement to build on our successes; someone with the passion and ability to take us further along our journey of excellent support for our stakeholders. You must be able to build strong and effective relationships with a broad range of stakeholders and to manage complex situations. You must also be prepared to work as part of a small team in a busy office with all that implies, such as rolling up your sleeves to get things done.

If you want to make a difference and are committed to supporting our work then please do apply.

To apply for the above vacancy please find below the contact details - please do not apply to Bournemouth Council for Voluntary Services

Contact Details:

Download an application pack from

Tel: 01202 474203
Closing Date: 30/11/2018